DMD Pioneers is for people with Duchenne's muscular dystrophy who have beaten the odds and are continuing to thrive despite the upwards battle they face. This is their blog...
Louie J. Boitano, M.S., R.R.T., a true pioneer in the field of respiratory support for those with neuromuscular disease has died. He dedicated his life to the betterment to not only his patients but for all of those with neuromuscular disease through his calling as a respiratory care practitioner and researcher focused on noninvasive respiratory [...]
I’ve always loved the news but never dreamed I’d one day graduate college and work in the journalism field. My journey began when I enrolled at the University of Montana in the fall of 2007, after escaping a North Dakota nursing home. School was intimidating at first because I was 32 and didn’t know if [...]
DMD Pioneers.org has been redesigned for your viewing pleasure. The site’s design utilizes the Mainstream theme from WooThemes and now better showcases the bloggers writings in a clear and vibrant manner. Nearly all of the features of the previous design have been retained with exception to the ‘DMD in the News ‘ feed from Yahoo! [...]
I have finished importing the blog entries and comments into WordPress. The transition to WordPress is going smoothly and should be finished soon.
Candle lit. Prayer said. Respects paid. Today marks thirty-eight years since Duchenne muscular dystrophy took my brother, Joseph, away. No matter how far removed I am from that day, the loss still looms and inflicts a harsh emotional jab. At fifteen, he didn’t even have a chance to taste life, and I never had the [...]
On the behalf of DMD Pioneers, I would like to say Happy Birthday to our own Scott Sands. You truly inspire us all in your fighting spirit to keep striving for the future. Have a great day celebrating your 46th Birthday!
I’m a little over two weeks removed from my latest brush with death. I went into a little something that those of us in the business refer to as V-tach, short for ventricular tachycardia. That’s when the lower chamber of your ticker suddenly decides to beat ridiculously fast, and if left untreated, will eventually kill [...]
Jonathan Woodcock, a member of DMD Pioneers and Kiwanis Club of Gloucester Township, NJ, is holding a bowling fundraiser for CureDuchenne and would like to invite anyone who can attend. The Gloucester Twp Blackwood (NJ) Kiwanis Club is hosting a Bowl-a-thon to raise money for CureDuchenne. Sunday, May 20, 2012 12:30pm until 2:30pm. 30 Strikes 501 [...]
The first meeting for the Fathers of Children with Muscular Dystrophy Resource Group will be held on March 28th, 2012 at MDA Tacoma Office at 6PM. All fathers and male caregivers of children with Muscular Dystrophy in the Tacoma, Washington and greater surrounding area are invited to attend. Please click on the flye for more [...]
The software that powers DMD Pioneers.org has been upgraded to the latest version. In addition to the update you will notice some design changes have been made. A new menu has been added to the left side of the page that lists each blog category allowing readers to read from specific categories. The DMD Pioneers [...]
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