Word Painting: A new blog by John Herrmann
Our very own John Herrmann has started a new blog to showcase his poetry and creative prose. You can find his Word Painting blog at http://wordpaintingbyjohn.blogspot.com/
Archive | General
Happy Birthday Scott Sands!
On the behalf of DMD Pioneers, I would like to say Happy Birthday to our own Scott Sands. You truly inspire us all in your fighting spirit to keep striving for the future. Have a great day celebrating your 46th Birthday!
iFib
I cannot believe that six whole months have soared by since I was given a new lease on life. A tiny device called an ICD was surgically implanted beneath a patch of muscle tissue in my chest. Since I have this disease known as Duchenne muscular dystrophy, which has been ravaging through my body over […]
Blogger Introduction: Scott Sands
Hello, Scott Sands here! You may know me from my personal blog, SCOTT SANDS ALIVE, or from Facebook, or Twitter, or e-mail, or this Yahoo group called DMD Pioneers. Like the rest of my DMD brothers, I am not exactly healthy by any means. In fact, I am the living definition of a physical wreck. […]
A New DMD Resource
I am happy to report that “Children and Young Adults with Muscular Dystrophy: An Annotated Bibliography” is available on the Muscular Dystrophy Association’s website. The Annotated Bibliography is the first bibliography of books by and about persons with muscular dystrophy, according to the MDA. Funding for the annotated bibliography came from a Carnegie-Whitney Award from […]
Blogger Introduction: Sean
Hi. My name is Sean. I am a blogger and unpublished fiction writer from Vermont. That’s the US state between New York and New Hampshire, to the geographically challenged. I was diagnosed with Duchenne Muscular Dystrophy as a baby. My brother had been diagnosed before I was born, at 6 years old. My parents were already far too familiar […]
Blogger Introduction: Charles
I have been a member of the DMD Pioneers Mailing List on Yahoo! Groups from the beginning. Along the way I have been able to learn a lot of valuable information but most importantly I have been able to make a connection with so many incredible people with DMD and other similar conditions. Many of the friends […]
Blogger Introduction: Michael
Hello All and welcome to the lives of those of us with Duchenne Muscular Dystrophy or DMD for short. We call ourselves DMD Pioneers because we have long surpassed the projected “prognosis,” of this relentless disease I refer to as the monster within. Anyway, thank you for joining us as we give our first hand look at the […]
Blogger Introduction: Mark
My thirty four year journey living with DMD has taken me on a path filled with experiences both good and bad. Growing up in Jamestown North Dakota, I had as normal of a childhood as one with DMD can have. I attended regular public school and graduated high school in 1993. After high school, I […]
Blogger Introduction: John
I am John Herrmann. At 41, I am one of the old guys with Duchenne Muscular Dystrophy, but not the oldest. As a result of DMD, I use a ventilator 24/7, use a feeding tube to eat, and a power wheelchair to get around. I live in Rancho Santa Fe, California in San Diiego County. […]
