Archive | In Memoriam

12 March 2015 - by ~ 1 Comment

Chris Webb: 1968 – 2015

Chris Webb: 1968-2015

DMD Pioneers remembers longtime member Chris Webb. Chris was well known to the Duchenne community and loved by many. He was an avid of heavy metal fan that attended many concerts and had many back stage opportunities to meet members of the bands he enjoyed. He was an accomplished poet who, in 2012, became a […]

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01 August 2014 - by ~ 1 Comment

Scott Sands: 1966 – 2014

ScottSandsInMemoriam

“I am dealing solely in moments now, and my goal is to maintain my relentless desire to seize every single one of them! You see, moments accumulate and grow into futures, and futures comprise lifetimes. By focusing on moments, I can relish in looking back on them from a future that was never promised.” – […]

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22 January 2014 - by ~ 1 Comment

Tom Mecke: 1960 – 2014

tommecke

DMD Pioneers would like to take a moment to remember Tom Mecke. Tom Mecke, 54, was one of the oldest known survivors of Duchenne muscular dystrophy and a true pioneer in the way he lived. Tom sadly passed away yesterday, on the night of his wedding day. Our thoughts and prayers go out to his […]

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