17 November 2015 - by ~ 2 Comments

Glossopharyngeal Breathing; What the heck is that?

ribbet

Glossopharyngeal breathing, also known as frog breathing or just GPB, is a method of breathing that people with weakened breathing muscles can use without mechanical intervention. Obviously this is no replacement for volume ventilators but it can be used in the event of ventilator failure or accidental disconnect. The technique is not as effective for […]

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02 August 2012 - by ~ 1 Comment

Happy Birthday Scott Sands!

Scott & Rebekah

On the behalf of DMD Pioneers, I would like to say Happy Birthday to our own Scott Sands. You truly inspire us all in your fighting spirit to keep striving for the future. Have a great day celebrating your 46th Birthday!  

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06 July 2012 - by ~ 1 Comment

5 Beats, 5 Minutes

I’m a little over two weeks removed from my latest brush with death. I went into a little something that those of us in the business refer to as V-tach, short for ventricular tachycardia. That’s when the lower chamber of your ticker suddenly decides to beat ridiculously fast, and if left untreated, will eventually kill […]

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06 October 2010 - by ~ 3 Comments

Brain in a Jar

Brain in a Jar

In philosophy there is an old thought experiment that goes something like this: how do you know that anything is real? Let’s say that you were actually a brain kept alive in a large glass jar, a vat of chemicals, wired up with electrodes and fed nutrients intravenously. If the computer was powerful enough, it […]

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20 April 2010 - by ~ 1 Comment

Blogger Introduction: Scott Sands

Hello, Scott Sands here! You may know me from my personal blog, SCOTT SANDS ALIVE, or from Facebook, or Twitter, or e-mail, or this Yahoo group called DMD Pioneers. Like the rest of my DMD brothers, I am not exactly healthy by any means. In fact, I am the living definition of a physical wreck. […]

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28 March 2010 - by ~ 1 Comment

Blogger Introduction: Charles

I have been a member of the DMD Pioneers Mailing List on Yahoo! Groups from the beginning. Along the way I have been able to learn a lot of valuable information but most importantly I have been able to make a connection with so many incredible people with DMD and other similar conditions. Many of the friends […]

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19 March 2010 - by ~ 1 Comment

Blogger Introduction: John

I am John Herrmann. At 41, I am one of the old guys with Duchenne Muscular Dystrophy, but not the oldest. As a result of DMD, I use a ventilator 24/7, use a feeding tube to eat, and a power wheelchair to get around. I live in Rancho Santa Fe, California in San Diiego County. […]

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