DMD Pioneers.org

Hi. My name is Sean. I am a blogger and unpublished fiction writer from Vermont. That’s the US state between New York and New Hampshire, to the geographically challenged.

I was diagnosed with Duchenne Muscular Dystrophy as a baby. My brother had been diagnosed before I was born, at 6 years old. My parents were already far too familiar with the evil disorder. Sadly, my brother died in 1981 of respiratory failure. I have been fighting the beast for almost 38 years. The battle has me battered and bruised, but I am not giving in.

I am ventilator dependent with a plastic tube in my throat called a tracheostomy. My computer is my life and I can be an active member of society via the internet. Technology is a wonderful thing!

Thanks for reading. To quote Arnold Schwarzenegger, “I’ll be back.”